Is anybody dealing with an angiosarcoma?

What about radiation therapy ?

@aussiek, I can imagine it was a shock to find out that the swelling of your cheek was a sarcoma. Will you continue with chemotherapy? How are you doing?

Thank you for replying. Yes was a big shock and the specialist was quite blunt about the prospects. I’ve completed 6 cycles of chemo and decided that’s all I will have because the peripheral neuropathy in my hands and feet have become much worse so really effectively losing the use of the thumb and first 2 fingers on my right hand. Not much to complain about really compared to others

Hi @kev1992yhns, how are you doing? Do you also have a diagnosis of sarcoma?

The doctors say everyone is different and they can’t say how things will go, but it’s a bit frustrating not knowing, the specialist told me “It will take you, it’s aggressive, we can’t offer surgery or radiation because of the position, all we can offer is palliative chemo” So having had the chemo, now I guess it’s just a waiting game

@aussiek, palliative care is "living with ____" and providing options to live comfortably and to the highest quality of life you can. Be sure to share with your palliative care team any symptoms that may arise so they can help. Are you seeing a palliative care team?

Not yet. I have a ct scan next week and will follow up after that.

Ct scan was clear on all points.
Can anyone tell me of experiences with Peripheral Neuropathy following Paxlitaxil?
I have lost feeling in both hands and feet. Can this recover over time or am I saddled with it ?
Are there any measures to take to lessen the effect?

@aussiek, paclitaxel is known for causing chemo-induced neuropathy in some people. I'm sorry that you are dealing with this. Here are some discussions in the Cancer: Managing Symptoms support group that you might be interested in:

- Need hope: Neuropathy from chemo
https://connect.mayoclinic.org/discussion/needshope/
- Chemotherapy-induced neuropathy: What helps get rid of it?
https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/
- What are some ways to try to minimize neuropathy during chemo?
https://connect.mayoclinic.org/discussion/what-are-some-ways-to-try-to-minimize-neuropathy-during-chemo/
See all https://connect.mayoclinic.org/group/cancer-managing-symptoms/?search=neuropathy#discussion-listview

Aussik, are you still in treatment or have you completed chemo??

I have completed 6 cycles of Paclitaxel by end of September, and my latest ct scan was clear. The neuropothy gets worse, fingers and handsd, toes and feet, and creeping up my legs.
I saw a paper on Japanese Goshajinkigan which seemed to show some results, used by naturopaths but not much here. Does anyone have any knowledge of this?
https://bpspubs.onlinelibrary.wiley.com/doi/full/10.1002/prp2.850