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@56pan

Very, very useful information and thanks for taking the time. I was declared stage 4 in Sept of last year and was told I had likely less than a year to live. 7.3 cm. tumor on my pancreas, several lesions on my omentum and 3 lesions on my liver which were all proven to be PACC with biopsies from a laparoscopic procedure. After 12 cycles of Folfirinox ending in early Apr. of this year, the only thing visible on the CT scans since Apr. is one remaining tumor on my liver. Which is growing and now 6.3 cm. My oncologist is having the same surgeon that did the laparoscopy last year to do another one this coming Wed. The oncologist's plan is if there's evidence of problems on the peritoneum/omentum, I'd likely go back on the Folfirinox. If there's no evidence, then he plans to have the liver tumor burnt off with radiation, microwaves or radioactive beads. And I guess I'd be on some maintenance cancer preventive drug the rest of my life. Probably more than anyone here wanted to know, but thought some of it might be of use. This is one nasty, hateful disease.

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Replies to "Very, very useful information and thanks for taking the time. I was declared stage 4 in..."

Getting to maintenance can be a good thing. I have been there for over a year. I started off with a pnet that spread to my liver and a few other places. I didn't have options other than chemo CAPTEM. It saved my life. I now am on just capecitabine for maintenance.

This is very very good news that the folfurinox worked so well for you. I am a similar case. In my situation, I had the radioactive beads then surgery. I’m now on a clinical trial and doing well! For next steps, be sure to get several opinions from top docs. Congrats! And keep fighting!