I need to share my Dx. For 3 years I had IBSC or that is what 4 GI docs told me. Diarrhea all those years, explosive. Linzess and Amotiza with no help. Always a change of clothes and wet wipes everywhere I was brave enough to go. Being an RN I had to throw a small fit to have lab look at celiac, gluten intolerance and pancreatic cancer, although I have no pain except right before my explosive bowel eruptions, night after night. Malnutrition was also an issue.
Well, I have been missing enzymes for 3 years. My mother had colorectal cancer. Exocrine Pancreatic Insufficiency.
ZERO enzymes from a diseased pancreas . None for 3 years. Colonoscopy found 2 polyps, endoscopy shows polyps everywhere. Polyps on kidney, stomach and left upper quadrant liver concerns. My pancreas is double triple polyped engulfed. Yipes…5 polyps excised from stomach with endo #2. 2 adenocarcinoma. 3 reporting negative. Placed on Bentyl an pancrelipace 36,000 units, costing me $614per Rx. My liver was ok by MRI.

My concern is….the clinic at The Ohio State University sends me home using same meds and have Endo again in a year. Should I be scared to live with cancerous polyps for 12 months? Should I get a second opinion at The Cleveland Clinic??? Should I trust my Clinic physicians in Columbus. Just because I’m 71 should not change my prognosis for treatment. How would you react telling me to go home and see you next years for another endoscopy. ... Frightening. !!!
Any additional ways/treatments to be proactive.??
RKA19