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Urgent help.. Sigmoid Volvolus, disabled adult daughter (autism)

Digestive Health | Last Active: Sep 4 8:41pm | Replies (36)
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@minajo

Again my autistic nonverbal daughter back in hospital six weeks later, same, volvulus, confirmed on ct, decompression done yesterday,
Now resection needed or it will reoccur, and cause her severe pain
But she can't do ng tube, large quantity of liquid prep, started magnesium sulfate
I am petrifed of colostomy as she cant take care of herself but surgeon confident a anastomosis will work?
But she needs clean colon, how?
On clear liquids restrained so ahe won't pull rectal tube, ivs,
I am a desperate mom, am i doing right thing? But if no sugery, im putting her in pain
PLEASE ADVISE, SUPPORT
IM
Sincerely maureen

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Replies to "Again my autistic nonverbal daughter back in hospital six weeks later, same, volvulus, confirmed on ct,..."
Sue, Volunteer Mentor | @sueinmn | Oct 20 4:07pm

@minajo Oh Maureen, I am so sorry that you and Lisa are having to deal with this again so soon. She must be so upset to be back in the hospital.

I think that in many cases of anastomosis of the colon, two ends can be rejoined to bypass the bad section without requiring a colostomy. That sounds like what her doctor is suggesting too.

I think her fear is probably the most difficult for you, so anything that will prevent future hospitalizations is the right and best thing for you to do. I assume that her pain is very difficult for her to understand, leading to even more anxiety on her part, so whatever you can do to relieve it is the right move.

Is there anything the hospital can safely give her to ease her anxiety?

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shelleyW | @shelleyw | Oct 20 8:01pm

Maureen,
I answered your private message. How are you doing today? I didn't hear back from you. How is Lisa doing?
All the best, Shelley

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