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I developed a large kidney stone while taking Tymlos. This is a known possible side effect. I told the NP that I have a strong family history of kidney stones, but she just blew it off. When I started having pain, she denied that it could be a kidney stone because the pain was not in the location that pain from a kidney stone would usually be. During the next 9 months, I saw my gynecologist, my gastroenterologist, my PCP and a urologist. Even the urologist refused to believe it was a kidney stone. I finally ended up in the ER with severe pain. I had a very large stone - too large to ever be able to even get out of my kidney on its own. I had a surgical procedure to place a stent in my ureter. I lived with that miserable stent for a month before they performed surgery to break up the stone and remove it. After that, I had to have the stent for another 2 weeks. It was almost a year of misery.
A friend of my Mom was on Fosamax. She developed leukemia, and while undergoing chemo, her oral surgeon discovered she had jaw necrosis and needed surgery right away. She couldn't have surgery due to her leukemia and chemo. She has since passed away.
I will never take any of these drugs again. I will do what I can otherwise, but in my opinion, these drugs are poison.
Replies to "I developed a large kidney stone while taking Tymlos. This is a known possible side effect...."
@lylii,
thank you for this terrifying post. Four physicians missed the stone even with your direction. It cautions all of us to trust ourselves and continually look beyond the answers we are given.
I'm sorry for your experience and pray you never fracture.
@lylii Sorry you had such a terrible experience with a kidney stone. It sounds like incredible incompetence from the doctors. Why did they not just do an ultrasound of your kidneys and bladder? That's standard practice.
I've had north of 50 kidney stones and some of them were absolutely awful but they should never cause that kind of long term ongoing pain. Also kidney stones (depending on the type) can sometimes be dissolved no matter the size. I used magnesium citrate and sometimes add potassium citrate and have dissolved a large one (14mm) doing that. I've also stopped myself from having kidneys stones for 10 years now using magnesium citrate multiple times daily. And I've verified it twice by stopping the mag cit and getting kidney stones again and then restarting mag cit and dissolving them. All verified by ultrasound (and my pain or lack of it).
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@lylii for me it is drug side effects vs fracture side effects (I have 7). Fractures were excruciating and permanently disabling. I cannot afford more. I try to minimize the effects of medications by altering doses or timing in cooperation with my doctor. I have kidney disease, afib and lupus which complicate things. I understand your position and pray you don't fracture.