← Return to Recently Diagnosed with Nephroptosis (floating kidney). Anyone else?

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@jabrown0407

The doctor I saw in Dallas that would consider surgery is with UT Southwestern and he told me he does about one nephroptosis correction surgery a year. He is a urological surgeon who sits in a named chair at UTSW. He mainly does robotic and laparoscopic surgeries. The two doctors I saw that refuse to accept it as a medical problem that requires correction work for Baylor Scott and White. Both of these doctors are also urological surgeons.

Both medical networks are teaching hospitals. I also consult with a medical team at Cleveland Clinic and they are interested in following my encounters on the topic because none of them have ever had a patient with the problem and thus have no real-life experience. They did not even know that the kidney floats back to its home position when you lay down. It simply is a rare condition and many cases do not require treatment. The surgical solution is a very serious procedure and should not be considered unless compelling evidence supports the need for it. I doubt any doctor would do it with less than compelling evidence.

I have been told what symptoms to watch for and when to go directly to an emergency room vs. contacting my doctor during office hours.

I first had my floating kidney diagnosed 50 years ago. Then I gained some weight and only had minor pains. Fast forward 50 years and I had a hysterectomy. All of a sudden there was space again for my kidney to float and it did. I went to the urologist and told her the sequence, she ran an IVP to confirm. Then we went on a journey to find qualified help. For now I am content with where I landed.

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Replies to "The doctor I saw in Dallas that would consider surgery is with UT Southwestern and he..."

Could you let me know the name of the doc at UTSW? My sister is struggling to get surgical intervention for her nephroptosis and is losing hope fast. She has pain at a 8-9/10 whenever she stands (and she has a very high pain tolerance!) It’s been completely debilitating and no local docs are willing to help. Thank you!