The doctor I saw in Dallas that would consider surgery is with UT Southwestern and he told me he does about one nephroptosis correction surgery a year. He is a urological surgeon who sits in a named chair at UTSW. He mainly does robotic and laparoscopic surgeries. The two doctors I saw that refuse to accept it as a medical problem that requires correction work for Baylor Scott and White. Both of these doctors are also urological surgeons.

Both medical networks are teaching hospitals. I also consult with a medical team at Cleveland Clinic and they are interested in following my encounters on the topic because none of them have ever had a patient with the problem and thus have no real-life experience. They did not even know that the kidney floats back to its home position when you lay down. It simply is a rare condition and many cases do not require treatment. The surgical solution is a very serious procedure and should not be considered unless compelling evidence supports the need for it. I doubt any doctor would do it with less than compelling evidence.

I have been told what symptoms to watch for and when to go directly to an emergency room vs. contacting my doctor during office hours.

I first had my floating kidney diagnosed 50 years ago. Then I gained some weight and only had minor pains. Fast forward 50 years and I had a hysterectomy. All of a sudden there was space again for my kidney to float and it did. I went to the urologist and told her the sequence, she ran an IVP to confirm. Then we went on a journey to find qualified help. For now I am content with where I landed.