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Considering treatment for M. Abscessus

MAC & Bronchiectasis | Last Active: May 2 8:55pm | Replies (43)

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@cattleya

Hi. Thanks for your reply. I'm not sure yet what my medication regimen would be but I was told it would be some combination of IV Amikacin, IV Imipenem, oral Linezolid, oral Omadacycline and inhaled Arikayce. I have an appointment in January to discuss and am just trying to educate myself about the process. I'm wondering if anyone has gone through this treatment successfully and what the process was like. I also wonder at what point they made the decision to take the medication. I honestly feel well. I use a saline nebulizer 2x/day and don't cough very much. I can feel some shortness of breath walking up hills and playing pickleball but otherwise no sob unless I'm exerting myself. I think I understand your dilemma. These seem to be very powerful drugs with serious side effects. It's a big decision. I wish you all the best in making your decision. Please let us know how it goes.

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Replies to "Hi. Thanks for your reply. I'm not sure yet what my medication regimen would be but..."

How are you doing? Did you start treatment for the MABS? I also have M. Abscessus and just started treatment today, so too soon to give feedback. I too was feeling fine and then it hit me, I felt slammed. My ID doctor has me on Arikayce daily, oral Linezolid, and oral Nuzyra. I'm going to NJH this month and my doctor contacted the NJH doctor and discussed my treatment plan. Both thought it was a good route for me. I'm really spacing out my doses as much as possible. Linezolid at 6 AM and 6 PM with food, Arikayce at 11:30 am, and Nuzyra at about 10 PM. I'm taking Nuzra at bedtime since it's best to fast 4 hours before and 2 hours after. I'm just hoping that I will start to feel better soon.