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Good morning Tinkerbel, my spouse was diagnosed with bile duct cancer and had a 6.5cm malignant tumor on his liver. It was caught early but cholangiocarcinoma is aggressive and rare. He had surgery on 6/24/24 for liver resection where the left lobe of his liver was removed by the surgeons and da Vinci robot and pulled out thru his naval. Surgeons did not see the cancer anywhere else and great margins. He started oral chemo capecitabine in August, 2024 twice a day 2000 mg each dose. Plan of treatment for chemo 2 weeks on followed by 1 week off of chemo. Week 7, severe diarrhea 8-10 times a day for 3 weeks and he lost 18 lbs. I had to take him to Mayo three times in 2 weeks for IV hydration with potassium. He goes next week for his bi-monthly CT Chest, MRI abdomen, lab work and visit with PA. He stopped taking chemo on 10/2 due to the diarrhea and Mayo wants his guts to heal and will go back on chemo but dosage will be reduced. The cancer was caught early due to symptoms he felt and determined Stage 1B/Grade 1. His 5 year prognosis is 60/40.

I just hope and pray the cancer does not return and he does well on a lower dosage of chemo. Mayo’s plan of treatment for the first 2 years is lab work every 3 weeks and bi-monthly CT Chest and MRI abdomen. The chemo is for 6 months, he also has another symptom where the bottom of his feet are peeling and experiences pain and swelling on his fingers. This is also a side effect from chemo for hand & feet peeling.

What has Mayo planned for you?

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Replies to "Good morning Tinkerbel, my spouse was diagnosed with bile duct cancer and had a 6.5cm malignant..."

denvergirl here...I also was diagnosed with bile duct cancer in August 2024. I had surgery at Mayo Rochester which was successful with clear margins. With the Capecitabine I too had hand and foot syndrome plus neuropathy. Udderly Smooth cream really helped my skin, and Skechers Slip Ins were the most comfortable shoes for me. I did have diarrhea too but it was manageable.
Wishing you the very best.