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Medication Related Necrosis of the Jaw and infection in the Tori

Posted by kenyalama @kenyalama, Oct 7 8:39pm

Anyone diagnosed with MRNOJ? I also have an infection with a fistula on the Tori (bony growths that can develop in the mouth) and I suffer from TN RA Sjogren’s,
SVT and more bur MRNOJ is my last diagnosis and they want to do surgery.

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Oct 18 9:05am

Hello @kenyalama, I'd like to invite @lee59 to this discussion as they have discussed necrosis of the jaw after chemo.

@kenyalama, there are also a handful of discussion around jaw necrosis issues based around osteoporosis medications. If you are comfortable sharing, was there a particular medication or treatment for one of your listed diagnoses that specifically triggered the MRNOJ?

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1 reply
lee59 | @lee59 | Oct 18 12:17pm
In reply to @JustinMcClanahan "Hello @kenyalama, I'd like to invite @lee59 to this discussion as they have discussed necrosis of..." + (show)
@JustinMcClanahan

Hello @kenyalama, I'd like to invite @lee59 to this discussion as they have discussed necrosis of the jaw after chemo.

@kenyalama, there are also a handful of discussion around jaw necrosis issues based around osteoporosis medications. If you are comfortable sharing, was there a particular medication or treatment for one of your listed diagnoses that specifically triggered the MRNOJ?

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The medicine I took that caused it was Prolia; given for severe osteoporosis. 2 injections. I knew my bones were bad. steroid’s given during aggressive chemo were also harmful. Even with “ great” insurance, the generic FORTEO will cost me between $1500 and $4000 per month.

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