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DiscussionDiscouraged with lymphedema: How do you cope?
Breast Cancer | Last Active: Nov 5 11:50am | Replies (27)Comment receiving replies
Replies to ""people don't realize that while lymphedema isn't fatal, lymphangitis/cellulitis can lead to sepsis and that is..."
I too have had cellulits and ended up in the hospital. I have a pneumatic pump also. Yes, I agree, it sucks to be tethered to a machine every day. For me, if I'm not in compression, it takes about twenty minutes for the swelling to start. I was managing it really well for quite some time but recently the swelling inexplicably got worse. My lymphedema therapist told me to go back to the "wraps" (elatic bandages on my arm and gauze around my fingers and hand) that I wore when I first was diagnosed. I realized I have to know that I've done all I can to control this.
I just filled out the six page questionnaire for Beth Israel's Lymphedema Center. They will review it and determine the next steps for treat it.
They call this "Cancer's Dirty Little Secret." As much as I wouldn't wish this on anyone it is so good to hear your story and frustrations because I realize I'm not alone with this. I don't have pain but I sure know what you mean about feeling the skin "stretching". It feels like my arm is being pumped up like a tire or a balloon. Thanks for sharing your story and for your encouragement.