Anyone been to the Mayo Long Covid Educational 2 Day visit recently?

I am interested in this too....

I recently had my PCP send a referral request for this specific clinic. (Our hospital is a Mayo affiliate) and this was the response I received back. I’m pretty devastated that they don’t feel they can offer anything else to the plan I have in Place. I wanted to discuss LDN with them as no one down here will prescribe it.

TMK The 2 Day educational visit just teaches the best way to treat the symptoms (Lifestyle changes etc.) Not sure if they prescribe any medications.

I did their program back in February. It was a little helpful with tools for managing symptoms, and as a support group it helped me feel less alone. But I would not say it's really made much of a difference. They would not prescribe for me; I got LDN through my PCP.

Thanks for the info - did LDN help? I have never heard of it until now.

I think it has helped some with some of my symptoms. It's a little hard to tell, it's a very low dose, and my symptoms do come and go. But I'm generally improving so sticking with the LDN. While I've been on it (several months now) I have seen improvement with sleep issues, digestive problems, palpitations, and maybe fatigue.

I attended in February and found the information to be useful. The format of the classes were atrocious as you attended a class for close to four straight hours on two successive days. Although I was able to pay attention during the first two hours of each class, I lost focus afterwards, During the last hour of each class, I felt that their words were washing over me like the water from a shower. The words, like the water, did not penetrate below the skin. After each class, I was unable to function for the rest of the day. After the second class, I had to stay in bed for two subsequent days. If they had sent the information to me and allowed me to process it at my own pace, I would have been able to process the information better and retained it longer. I really like Mayo Clinic in general, but I feel that they need to redesign these classes and ask for the input of people who suffer from Long Covid to design it better.

Sorry to hear that. I've been dealing with the ups and downs of this for almost a year but its only been really bad 4 times. I'm struggling to understand why it takes 2 full days - would think 4 hours would be enough. Also, don't get why there is no virtual option. What do they teach that could possibly take that amount of time? Thanks for the input.

I attended the Mayo two day LC classes in June. They were virtual appointments of 2-3 hours. I found them very informative with many suggestions for home care. I especially appreciated the information about what is currently known about the how the virus acts in the body. The science of it makes sense to me and enables me to understand what is happening in my own body. I did take the compounded LD Naltrexone for about a month but quit when I developed a rash. Now the dermatologist tells me it couldn't be the Naltrexone since the rash didn't go away when I quit. So I'll try it again for my lightheadedness especially.

Thanks - good info! Does Mayo recommend trying the LDN?