@j77 How are you coming along?
I have the same, 10 months in. I had a brutal first 3 months with the lungs being the worst. It was like I got the worst form of asthma you can think of. Along with legs as cements, chest pain, 100% nasal congestion, cramps in the diapraghm, severe stomach pain/issues, muscle twitces etc.
After 5-6 months I started to slowly improve. During month 7-8 I could start taking longer and longer walks. During first week of september I played golf for 5 days straight and went out on challenging hike walks with my girlfried. A few days later I totally crashed (PEM?) and was back 5 months in time and both legs and arms are litterally as cement. Now I´ve struggled for 1,5 months to even walk 200 meters at slow pace. I also got the horrible neuropathy back where it vibrates like crazy. Mainly in my lower left leg and left ankle but sometimes it spread to stomach/arms as well. It makes me think of histamine intolerance or mast cell syndrome because the vibrations increase as soon as I eat or drink something, no matter what it is.
I´m also super tired/fatigued, but it is strange because I am almost dead from when I wake up until afternoons. Then I am "better" during late afternoons/evenings.
Another strange thing I´ve had for 7 months or so, I wake up in the mornings with difficulties breathing. It is like I have mucus made of rubber in the lungs. I do get some dry cough but it´s like super little mucus, but it prevents me from breathing normal. So it takes everywhere from 30 minutes to 2 hours before I can breathe normal again. I also have difficulties breating lying down overall. It is like my central nervous system forgets how to breathe when I lay down. I do use montelukast/singulair and cortison inhalator since I got covid, despite never having any asthma before and 4 different investigations does not show that I have any asthma, so this is something else.
The only tests that have not been normal is DHEA-S, PTH which both are a bit low and then homocystein and Calcium a bit high. Testosterone is on the low side as well.
So I am currently trying to figure out about the DHEA. Long time of stress can give adrenal fatigue and that is like textbook "burnout". So I´m thinking if the muscle fatigue is because of that. A severe burnout (caused by all the stress of covid and postcovid).
Hello! I am afraid I am still in pretty bad shape. I think I might have some Muscle Disease brought on by Covid they just can't figure out. I have many symptoms that mimic Myasthenia Gravis, but I guess Generalized because I don't have a droopy eye. I also have alot of symptoms that match up with Polymyositis. I just don't know what this is. The Rhuematologists say it is not Autoimmune even with a few positive ANA's and a high speckled pattern. All of my MRIs are clear. I had one EMG that was slightly abnormal for one leg, but the Neurologists did not make a big deal about it. I also had Genetic Testing that showed a few types of Muscular dystrophy including Limb Girdle Muscular Dystrophy, but the Specialists don't think it is MD either. I have alot of your symptoms. A constant dry cough, Low DEHA, cement legs, big heavy upper arms. My torso is very weak so it literally feels like I am walking a dead body. I did see an infectious disease Doctor that tested me for a bunch of diseases, but everything came back clear. He told me he would just diagnose me with Chronic Fatigue, but I have way more than that going on. I think it was that I was so burned out from working in Healthcare during the pandemic, going through perimenopause with caused anemia from severe periods and than getting covid on top of it. My immune system was probably already bad with everything going on and than probably fought so hard to fight up Covid with whatever I had left. It is almost like my DNA changed. Nothing in my body is the same anymore. Everything was attacked.I am so sorry that you are going through this as well. No one deserves this. I am praying that you feel better soon!