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Bladder Cancer Group: Introduce yourself and connect with others
Bladder Cancer | Last Active: 5 hours ago | Replies (154)Comment receiving replies
Hi all. I'm new to the group. I've had 2 surgeries within a year and now need a 3rd. This time there are only a couple of very small lesions. Mine is non muscle invasive but my doctor wants me to start BCG treatments. because of the high recurrence rate. I will be interested in reading your stories.
Replies to "Hi all. I'm new to the group. I've had 2 surgeries within a year and now..."
Hi. Diagnosed high grade NIMBC last April. Two surgery’s and 6 BCG treatments so far. 3 scheduled in November. Cancer is gone for now but high rate of reoccurring. My treatment protocol is pretty much standard. Next look in bladder scheduled for Jan.
@blazermaniac, I'd like to add my welcome. Using the group search function, I found this discussions related to Bacillus Calmette-Guerin (BCG) treatment where members are sharing their experiences:
- My journey with Bacillus Calmette-Guerin (BCG) treatment
https://connect.mayoclinic.org/discussion/first-bcg-treatment/
- BCG For Bladder Cancer: Anyone got experience to share?
https://connect.mayoclinic.org/discussion/bcg-for-bladder-cancer/
See all here: https://connect.mayoclinic.org/group/bladder-cancer/?search=BCG&index=discussions
Will you have the third surgery before starting BCG? How are you doing?
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Hi @blazermaniac. My husband started out that way and tired of it quickly. Also his first tumor was muscle invasive. He was a BCG failure but the treatment was not a problem for him. A short (hours) feeling of urgency right after the infusion and then no other side effects. He also had chemo right after his first surgery to remove a diverticulum off the bladder that contained the tumor. After a few years of continued recurrence and a Keytruda trial, he elected to have a radical cystectomy with neobladder formation. He is cancer free for 2 years plus and must catheterize daily and it was a huge surgery with multiple complications. His care has been at Mayo Rochester MN and he is quite satisfied with the results at this point. Read through the previous posts for more information. When is your next surgery scheduled?