Worried about starting Tymlos Wednesday and question about P1NP score

Hi @bluebonnet242! Yes, it's controlled by hydrochlorothiazide. My diet didn't have anything to do with it - always consume plenty of calcium and low sodium. The human body is complicated and often a mystery - there's still so much we don't know. Could be genes or mutations - it's idiopathic so unknown cause.

Great about your spine improvement with Tymlos! What are you doing (did) to lock in these great results?

Great about your spine improvement with Tymlos! What are you doing (did) to lock in these great results?

I stopped Tymlos due to hypercalciuria, which was really disappointing. I just started on hydrochlorothiazide. I would like to try Tymlos again if the hctz can keep Tymlos from raising the urine calcium again. I would love to hear how it goes for you! I had no other side effects from Tymlos.

I agree, jennirdh, that this site is great! I also just found it - two days before starting Tymlos :). I'm sorry you had some compression fractures - to get on my soapbox, osteoporosis is generally considered an older woman's disease and thus has not been studied as much as it should have been. I mean, the first osteoporosis drug was developed in 1995! So it frustrates me that the information to treat and manage osteoporosis is spotty and often unclear. My endocrinologist says everyone is different, but that does not negate the fact that treating this disease is not straight-forward. I do think the medical profession is getting better at addressing osteoporosis but it is not nearly where it should be. Even trying to find out what type of medical professional to see can be confusing. So, we end up doing a lot of research ourselves to figure things out and to rely on others' experiences and knowledge through a forum like this. I had to ask to get the bone marker tests after reading a lot about osteoporosis, but my endocrinologist did give me a lab order to do so. All this to say, I sympathize with you - how frustrating to have those fractures after doing so much to treat your osteoporosis.
My doctor was alarmed that my Dexa spine score decreased by such a large percentage so she thought the bone-building drug would be best first in order to try to prevent fractures as she feels I am high risk for fractures. I know I have to go on something else to lock in the gains from Tymlos, but we haven't gotten to that point yet so I don't now what she will suggest or give options for. I really don't want to be on drugs forever and. hope after this I can at least take a break, but we will see.
Good luck starting Tymlos! I hope you experience minimal or no side effects!! Cross fingers 🙂

I’m so relieved to hear from everyone, thank you so much for all your advice and stories. I started the Prolia partly because my sister was on it w great gains, but I have reminded her not to ever stop it without a GOOD plan, better than mine was. I started the Tymlos 2 days ago, at 2clicks, then 3, and I’ll work my way up. So far it’s ok, but I realize I’m taking a baby dose lol. Has anyone heard of Osteostrong? It’s a method (place) that helps you build bone density and strength and balance, once a week you go and do the machines, red light therapy, etc. Someone told me about it and there happens to be a location very close to me. I’m thinking of joining, the instructors all have been on this osteoporosis train as well. Google it if you haven’t heard about it, pretty encouraging.

I stopped Tymlos due to hypercalciuria, which was really disappointing. I just started on hydrochlorothiazide. I would like to try Tymlos again if the hctz can keep Tymlos from raising the urine calcium again. I would love to hear how it goes for you! I had no other side effects from Tymlos.