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DiscussionLiving with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Replies to "Thank you for responding! I agree with you about Stem Cells in our lifetime. Even much..."
I posted my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. I'm fortunate that I only have the numbness and some tingling with no real pain. I get my neuropathy supplements from a group I found on Facebook back in 2016 when I started my search for something that might help - https://theprotocolworks.com/. For the first 2 or 3 years the group maintained a list of supplements and links to where we could order them. Then the person who started the group met with a local pharmaceutical company and worked on having them combine the supplements into fewer capsules because folks didn't like taking so many capsules every day. So now it's down to 4 capsules in the morning, 2 at noon and 4 in the evening. They are trying to get the supplements into liquid form but probably won't happen in 2025. They do have a FAQ list on their website and one of the questions is Why the Protocol?. I made a PDF with a link to the research behind each of the supplements. The website has it but doesn't actually link to the research.
Another helpful site is the Foundation for Peripheral Neuropathy. Their complementary and alternative treatments list most all of the same supplements I take in the protocol - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf. They also have a lot of other information you might find helpful - https://www.foundationforpn.org/living-well/.
Why the Protocol (Why-the-Protocol.pdf)