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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Welcome @dadroot, You are not alone in the idiopathic neuropathy club. I chalk mine up to genetics and possibly related to the metabolic syndrome since I was labeled as having pre-diabetes for most of my adult life. You might find it helpful to scan through the related discussions and comments on stem cells and neuropathy. Here's a list - https://connect.mayoclinic.org/search/?search=stem+cell+%2Bneuropathy.
My own non medical opinion is that stem cell therapy is not there yet for neuropathy and probably not in my life time. I did get to listen to some research folks back in 2018 at the Minnesota Neuropathy Association and took some notes with the links to research they shared. I attached a PDF file of the notes but not sure how helpful it is.
I think it's great that you are doing your own research. It's probably one of the best ways we can help ourselves be informed on what treatments are available that might help provide some relief.
Do you have pain with the neuropathy during the day?
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Thank you for responding!
I agree with you about Stem Cells in our lifetime. Even much of the current research is still written in pencil and chalk. I read somewhere about a woman who was up in arms because Medicare wouldn't cover Stem Cell Therapy for her... but Ive read so much about the subject lately Ive lost track.
I don't have much pain during the day, but then I stay reasonably active in our garden. However, a year ago I prided (is that a word?) myself on my upper body strength. Once I picked it up without falling over I was able to carry a bag of fertilizer or cement mix around our yard to where they needed to go. This summer I noticed that my fingertips are going numb and my upper body strength is quite a bit diminished. Now anything much heavier than a coffee much is almost impossible to hoist.
At nighttime I take prescribed Lyrica and if that doesn't quite do it I'll chomp a Marijuana Gummy or two so I can sleep.
What have you found that helps you?
-Don