Tortuous colon diagnosis and diarrhea for months? help

Posted by shortiseltzer @shortiseltzer, Oct 10 10:13pm

I’ve been dealing with weight loss, diarrhea, bloating, gas feeling full and acid buildup. I had my first colonoscopy/ upper endoscopy and it revealed that I have a torturous colon.I’m currently taking anti diarrheal, acid reducer and nausea meds as needed.
I’m very interested to hear about what foods are easier with this issue/ issues. I have not had much luck with most foods except bland.

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@shortiseltzer

Thank you, I am 43 and down to 108lbs, definitely underweight. I have limited my diet as I’m a server and cannot run to the bathroom in a moments notice. Beyond that, I hate having to plan my day around how close a restroom is. I have always been a “picky eater” but I have become extremely picky since dealing with this. Sometimes I give in to my food urges but end up paying for it in the long run. (No pun intended)

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💙💚🩷🩵💛love your pun.
Sometimes we just get tired of only eating healthy and simply want some not good for us goodies. ShelleyW

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@shelleyw

researchmaven,
Thanx for sharing.
Could I whip the egg whites into fluffy, then fold in at the end? Glad you mentioned the coconut oil, cuz I have issues with several nuts, walnuts are the worst. Heck, I will even pass up a chewy brownie if walnuts were even in the cupboard.
I do use a meal replacement protein, called Arbonne, my daughter needed some good protein while in the Air Force, so she did all the research on it. She found a prebiotic and something else that she said would be good for my stupid stomach.
Chia powder vs chia seeds, your recommendation? I have severe CIC, I tried the soaked seeds, then got scared of them burrowing into my intestines and never leaving.
Where do you buy the LiveKuna?
Thanx, so much for sharing. Thanx, for getting my 🤢‼️ ShelleyW
ShelleyW

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Hi ShelleyW,

Happy to hear back from you 🙂

Yes, you can certainly whip the egg whites. Consider trying egg whites in a carton -- once; they are thin compared to whole egg whites (so less gross?) and you'll have less wash-up than whipping whites.

Glad coconut oil works sounds yummy to you; there is avocado oil in your Arbonne mix (I checked), avocado oil is possible too, but maybe not as yummy. Note the saturated fat of coconut oil is between that of olive oil and butter in terms of health impact, but that may not be something you need to consider. It does taste good, even the smidgen I use (1/4-1/2 teaspoon).

I note that Azure Market (online/mail order) sells the pea protein isolate I use. It is $9.84 for 1 lb and 39.57 for 5 lb. Your Arbonne product, by volume, has that has its top ingredient.

And yes, try chia powder for fiber and whatever else is good in it. I use 1/2 teaspoon in my hot cereal mix as the quantity matters too and more than that may be harsh on my gut. I definitely avoid chia seeds due to the same concern you have.

LiveKuna Organic Plantain Flour is now solely sold on Amazon. I have to admit I love it and besides using it for hot cereal, it is my "flour" for other sweet things. I use another brand of plantain flour for savory baked goods. I have to buy 11 lb though; I get it from an online restaurant wholesaler.

All my best to you!

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@researchmaven

Hi ShelleyW,

Happy to hear back from you 🙂

Yes, you can certainly whip the egg whites. Consider trying egg whites in a carton -- once; they are thin compared to whole egg whites (so less gross?) and you'll have less wash-up than whipping whites.

Glad coconut oil works sounds yummy to you; there is avocado oil in your Arbonne mix (I checked), avocado oil is possible too, but maybe not as yummy. Note the saturated fat of coconut oil is between that of olive oil and butter in terms of health impact, but that may not be something you need to consider. It does taste good, even the smidgen I use (1/4-1/2 teaspoon).

I note that Azure Market (online/mail order) sells the pea protein isolate I use. It is $9.84 for 1 lb and 39.57 for 5 lb. Your Arbonne product, by volume, has that has its top ingredient.

And yes, try chia powder for fiber and whatever else is good in it. I use 1/2 teaspoon in my hot cereal mix as the quantity matters too and more than that may be harsh on my gut. I definitely avoid chia seeds due to the same concern you have.

LiveKuna Organic Plantain Flour is now solely sold on Amazon. I have to admit I love it and besides using it for hot cereal, it is my "flour" for other sweet things. I use another brand of plantain flour for savory baked goods. I have to buy 11 lb though; I get it from an online restaurant wholesaler.

All my best to you!

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researchmaven,
Thanx so much. I really appreciate the detailed explanation, I am 65, but my brain is more like 95, due to my 2 recreational accidents 18 years ago. 👋ShelleyW

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I have a tortuous colon and suffered with chronic diarrhea. A new
Gastroenterologist prescribed Cholestyremine. I believe it is a natural
product. I take one a day. It really works.

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@barjar

I have a tortuous colon and suffered with chronic diarrhea. A new
Gastroenterologist prescribed Cholestyremine. I believe it is a natural
product. I take one a day. It really works.

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barjar -- Glad you found relief. I Googled the drug and NIH said it is used for bile-acid diarrhea or ileal resection/disease. Is that what you had/have? Note that I have read that even with a tortuous colon, it doesn't always bother people and a gut health problem can lie elsewhere.

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@shelleyw

researchmaven,
Thanx so much. I really appreciate the detailed explanation, I am 65, but my brain is more like 95, due to my 2 recreational accidents 18 years ago. 👋ShelleyW

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shelleyW - I am sorry you had two recreational accidents and that they are still bothering you. I assume you mean your gut and other body parts aged due to the accidents. I am so sorry to hear that happened, but very glad you are coping as best you can.

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@researchmaven

barjar -- Glad you found relief. I Googled the drug and NIH said it is used for bile-acid diarrhea or ileal resection/disease. Is that what you had/have? Note that I have read that even with a tortuous colon, it doesn't always bother people and a gut health problem can lie elsewhere.

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Thank you for your reply. You make a very good point. My diarrhea
followed surgery on my colon following a cancer diagnosis. The tortuous
colon may not be the problem. It is bile malabsorption that causes
my diarrhea. However, the Cholestyremine stops the diarrhea.

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Try to follow the FODMAP plan!

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I got my results and I have both gastritis and collagenous colitis. I have been prescribed Budesonide and my doctor expects great improvement before I follow up Tuesday. I have already limited my diet immensely, to mainly chicken and rice, softer foods. But I have always been a picky eater but this is taking it to a whole new level.

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@barjar

I was also just diagnosed with torturous colon following
a colonoscopy. Prior to this diagnosis I had diarrhea.
I was prescribed Cholestyramine. It is very helpful.
I take it daily and no more diarrhea.

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Were you told you have bile acid malabsorption (BAM)? I ask because that is the main reason to take this medication.

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