← Return to In praise of Orgovyx

Discussion

In praise of Orgovyx

Prostate Cancer | Last Active: Oct 17 2:02pm | Replies (39)

Comment receiving replies
@ava11

I just met my Medical oncologist at UCI just 2 hours ago. My PSA was 0.06 about a week ago after 6 months on Orgovyx. As jeffmarc said in a previous post that I should stay on Orgovyx for another 12 months, unless I am having terrible time with it, because my Gleason score was G9 even if PSA is 0.0.
That is his recommendation. Some other oncologist might suggest that I can take a holiday until PSA start raising up.

Jump to this post


Replies to "I just met my Medical oncologist at UCI just 2 hours ago. My PSA was 0.06..."

I just want to make it clear that it is not my opinion about staying on ADT. The NCCN sets the standards for prostate cancer treatment. I was just letting you know what the standard is for best outcomes..

Their standard is that if you have a Gleason 9 you should stay on ADT for 24 months after treatment.

If you’d like to know more about it, come to an Ancan.org weekly Advance prostate cancer meeting. You can sign up with Ancan and you will get a newsletter about the weekly meetings. The newsletter almost always has brand new information about things going on. if you come to a meeting, they will tell you about why you should follow the guidelines. They’ve been helping people for 15 years and have had a lot of people cut off their treatment early. and regret the results. The next 2 hour meeting is next Tuesday at 6 PM Eastern time. You need to install GoTo meeting to participate. I get a lot of my knowledge in those meetings.

In the last meeting, there was a person who was Gleason nine that had taken holidays and is now facing some really serious metastasis issues. If you go to the Ancan.org website you can actually watch a video of the last weeks meeting, there were two Gleason nine people that were talking about the serious problems they were having. You don’t want to be where they are at. One nice thing about watching the meetings is that you can speed up the audio/video and watch it quicker.

Wish you the best. It’s tough mentally when you first get prostate cancer.