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Can anything prevent peripheral neuropathy after stem cell transplant?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 30 1:25pm | Replies (25)Comment receiving replies
Hi Lori, Thank you so much for that helpful information. It helps so much to hear from people like you who have been through it; and you have such a thorough yet comforting way of explaining things. I want to make sure I am doing everything I can to try to have a positive outcome so it's very helpful to know others experiences . To answer your question, I will be in patient for about 1 month and then at least 2 weeks at a local hotel, and then home after that (we live about 45 minutes away from hospital). Thanks so much - I can't tell you how much your words help me.
Replies to "Hi Lori, Thank you so much for that helpful information. It helps so much to hear..."
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Hi Deb, it’s my pleasure to help. Back when I had my transplant my husband and I pretty much flew by the seat of our pants…there was no one that we knew who’d ever had AML or a BMT. My BMT team was amazing in providing information, encouragement and support. But it’s not substitute for having information from someone who’s walked the walk.
So don’t hesitate to pop in any time to ask questions. You’re never alone here. ☺️
Are you all set for what to pack for a long stay at the hospital? Make sure to take a small extension cord for your phone, tablet, etc! Let me know if there’s anything else I can help with!