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Can anything prevent peripheral neuropathy after stem cell transplant?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 7 8:49pm | Replies (17)Comment receiving replies
Lori wrote wonderful info. So very true. I have talked with others that did not have this ice treatment, but when i was given the Melphalan, I was provided a full hour of ice and popsicles and a commitment to keep my mouth frozen. It had proven to help stop mouth sores from happening. I had no mouth sores. For me it worked.
GVHD, I was in a research study taking itacinab from Day 5 after transplant to day 100. So far, no GVHD. I was told by the research/transplant team that some people never get GVHD. I had MDS.
Leukemia has a few more variables, but as Lori says, the team is watching your numbers and you and together you can handle anything that comes up. I will tell you that at day 189 past transplant, so much of the uncomfortableness of the early days are gone. Each day is a new day.
Keep us posted Deb.
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Hi Katgob, Thank you so much for your message. I have heard about the ice chips and I'm glad you mentioned it helped because I will make sure I do that when I'm getting the chemo. And I did ask my doctor about the drug you mentioned itacinab, and while she was aware of it she plans to use a different drug that will also hopefully lessen and prevent GVHD; she wanted me to be part of that clinical trial (haven't gotten info on it yet). Thank you so much for sharing that you are feeling more comfortable - that will give me something to remember - that it will get better. I really appreciate your note - thanks again.