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Polymyalgia Rheumatica (PMR) | Last Active: Oct 20 10:00am | Replies (29)
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Replies to "I do not know what is too fast or too slow, but it does seem from..."
I think I need to slow down the tapering. I am so anxious to get off the prednisone! My SED was never checked but my last CRP was back down to 2.2. So I figured it was ok to try to taper faster. I am wondering though why the SED rate was not checked. Is it as important in the diagnosis as the CRP?
I wish ongoing tests were available here. I questioned it at the start and about bone density checks which make sense but for me in the UK I was emailed the tapering list and basically told to get on with it. The nurse was only doing her job but I always think prevention is easier than cure. There does seem to be a link with tapering too quickly so I will take longer when I reach 5mg and reduce by 0.5 each month all being well.