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Polymyalgia Rheumatica (PMR) | Last Active: Oct 20 10:00am | Replies (29)

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@art43

I do not know what is too fast or too slow, but it does seem from the various experiences that are documented here that more folks seem to have problems when they are going faster than others.
My rheumy initially said that if I followed her schedule, I would have no flares. I stuck with it, and it has proven to be true.
Have you had the tests to confirm that your PMR is in fact in remission ? SED and CRP ? If those are not normal I would not be tapering.

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Replies to "I do not know what is too fast or too slow, but it does seem from..."

I wish ongoing tests were available here. I questioned it at the start and about bone density checks which make sense but for me in the UK I was emailed the tapering list and basically told to get on with it. The nurse was only doing her job but I always think prevention is easier than cure. There does seem to be a link with tapering too quickly so I will take longer when I reach 5mg and reduce by 0.5 each month all being well.

I think I need to slow down the tapering. I am so anxious to get off the prednisone! My SED was never checked but my last CRP was back down to 2.2. So I figured it was ok to try to taper faster. I am wondering though why the SED rate was not checked. Is it as important in the diagnosis as the CRP?