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MAC lung cavitary disease: Looking for success stories

MAC & Bronchiectasis | Last Active: Oct 16 10:19am | Replies (12)
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@acelaplace

Thick or thin wall wasn’t mentioned. The Amikacin wasn’t bad except for developing tinnitus after 10 weeks. The minimum prescription time is 2 months. I had Mac without cavities 10 years ago. I took the Big 3 for almost 2 years. After treatment I did not continue my airway clearance techniques. I ran everyday so I thought that was good enough. I was stable for 7 years. Mac came back with cavities after being treated with cortisone for a frozen shoulder and a case of Covid. I am not sure whether these occurrences or lack of ACT’s caused the return. Probably a combination of all.

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Replies to "Thick or thin wall wasn’t mentioned. The Amikacin wasn’t bad except for developing tinnitus after 10..."
helen1000 | @helen1000 | Oct 16 9:49am

Thanks so much for your details. 😊 I really appreciate it. 🙏
My friend's mac/ cavity came back after 7 years too. And another patient says her MAC recur after six years. Probably our lung is prone to bacteria infection so it always back. I am not sure about your weight but slender type is also prone to bacteria infection. In addition, I heard running reduces the muscle , probably weight lifting is a better exercise because it builds up muscle.

I am working very hard on gaining my weight right now. I eat throughout the day with nuts, seeds, whole milk yogurt, miso soup.....

I hope your mac will never come back again, another success story. 🙌

By the way, you don't have any autoimmnue disease or cystic fibrosis right?

Thanks again for your feedback!

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