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MAC lung cavitary disease: Looking for success stories
MAC & Bronchiectasis | Last Active: Oct 16 10:19am | Replies (12)Comment receiving replies
Hi Acelaplac,
It is really nice to hear your success story. It sounds like you made the right decision. Great for you! My case is similar to you, two small cavities (1-2cm), but one has a thick wall. Usually cavity without thick wall shrinks faster. Your cavity probably does not have a thick wall, I guess?
IV amikacin is scary and you are really lucky and courageous! But I heard they work really well on MaC infection.
I also heard some patients' cavities go away but come back later. I really want to understand why. 😕
Thanks and hope to receive your feedback 🙏
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Thick or thin wall wasn’t mentioned. The Amikacin wasn’t bad except for developing tinnitus after 10 weeks. The minimum prescription time is 2 months. I had Mac without cavities 10 years ago. I took the Big 3 for almost 2 years. After treatment I did not continue my airway clearance techniques. I ran everyday so I thought that was good enough. I was stable for 7 years. Mac came back with cavities after being treated with cortisone for a frozen shoulder and a case of Covid. I am not sure whether these occurrences or lack of ACT’s caused the return. Probably a combination of all.