← Return to Newly diagnosed with prostate cancer: What might I be in for?

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@bens1

@mspotter1956

I have attached a pdf file which is a list of prostate cancer research items, with descriptions I collected over time. I think they might be helpful sources to you.

I had a Gleason 3+4 and a psa of 11.2 with the cancer confined to the prostate. I finished my radiation treatment in February 2023.

If you get radiation, please keep in mind that the margins used impact healthy tissue and therefore side effects. Margins refer to the additional area around the prostate that is treated. There are sometimes microcells that cannot be picked up with imaging so many times radiation treats the entire prostate plus a margin. I had the Mridian radiation machine with 2 mm margins, vs 3-5mm for most other machines. It has real-time built-in MRI which is a big deal in the industry. You might want to ask your doctor about margins and real-time MRI imaging radiation machines versus fused images.

The decipher test, as j76 mentioned, can change a treatment recommendation and is worth getting. They will use material from your biopsy.

Remember that doctors are dedicated but not infallible, even at centers of excellence, though I agree with posters recommendations in this regard. Keep coming back to this site as much as you can. Many times, you will get the nitty gritty here that doctors may or may not discuss with you. Sometimes it can seem overwhelming, but everybody here wants to help. One day at a time.

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Replies to "@mspotter1956 I have attached a pdf file which is a list of prostate cancer research items,..."

Thank you very much for the information. My goal is to remove the cancer and try to avoid major sexual and urinary function side effects, if possible.

@bens1
Great information to @mspotter1956. The margins are important as you mentioned. Where did you have your radiation done?

My R/O and urologist kept telling me that prostate cancer does not always show up on MRIs and biopsies and can be at celluar level and go undetected by MRIs and biopsies.

I am not sure what my margins were. My R/O at UFHPTI was quite adamant he was going to treat margins and the entire prostrate. I had 30 rounds of proton pencil beam radiation.

He did another test (beyond MRIs with contrast, Fusion/Biopsies, Decipher, bone scan, PSMA). He injected something into my prostrate via penis saying would allow a better look at lower, and back part of prostrate. This was done during the transition part of setting up treatment.

I think your real-time MRI imaging radiation treatments is state of art at this time. I know I had markers put in and they always did a low dose xray (twice each treatment) to make sure prostrate was aligned perfectly.