Connect
Comment receiving replies
So I just received my first Evenity injections yesterday. I had no pain or redness, just a lump on one arm that dissipated today. I do have a slightly stuffed up nose and a dull headache. Hopefully that is all I get. The nurse who administered the shots at the Mayo Clinic was very encouraging about this drug and said that everyone seems to do well on it. I am 66 with pretty bad scores. I took Reclast for two years and had some improvement and I’m now on Evenity for a year. I am so hopeful for good results. I feel like a ticking time bomb waiting for that first fracture and I don’t do any of the activities I used to enjoy because I’m afraid of fracturing my spine. My PT I went to said that I didn’t have to worry that much about that, but I’ve read all of these posts and I feel that a lot of the exercises she was having me do (bending from the waist to touch toes, etc) were not good. There is so much conflicting information out there, it’s hard to know what to do. Trying to explain to family that no, I can’t do things or lift grandkids is very heartbreaking because they don’t get it. Anyway, I’m on this journey and will let you know how I do. Also had a ekg and am scheduled for a cadioechogram on Monday to make sure all is good in that area.
Replies to "So I just received my first Evenity injections yesterday. I had no pain or redness, just..."
@maieva It is a very worrying situation to know you have severe bone thinning and a greater chance of fracturing than you once had. It's not an exact science but you can do a lot to make yourself safer and at the same time do fun (or needed) activities. There are programs, books, videos etc with good exercise/movement/physical therapist experts etc that can help you learn general principles of moving more safely and effectively. That said there are lots of "experts" in exercise and fitness that can give very bad advice.
From what you have said I would guess that your PT is not knowledgeable about osteoporosis. You mentioned somewhere that your PT said you won't fracture that easily. Well, if you are anywhere in the -4.0 range you have a significant chance of doing just that, fracturing easily. Not saying you cannot be active but you certainly need to first be aware that you are at risk. The truth is the best starting point.the
All that bad stuff said I am very physically active and I was in the negative fours in my spine until Evenity. I was physically active before and all during my year on it. I do bodyweight/core/theraputic exercises twice weekly. I lift weights following a modified version of the LIFTMOR protocol twice weekly. I do Beat Saber and Synthrider virtual reality games again twice weekly. And I walk a lot. I enjoy all those things.
The two games are a substitute in a sense for badminton and pickleball. The vr games are fun, as challenging as you want them to be and they do not involve sudden twisting turning types of movements that can put you at greater risk. I know some people play pickleball or badminton without extreme and sudden movements and it may be fine for them to play those sports. I like to do things all out so I quit the two sports rather than run the risk. The two vr games I mentioned I can do all out but much more safely than the two sports.
Seems like I'm just talking about myself here but what I'm trying to say is that if you learn more about exercise and movement, what puts you at greater risk and what puts you at less risk then you can be quite active and have fun.
Best of luck getting good improvement with Evenity.
Connect
@maieva I have learned to be wary of most PT's. I found a good one who does massage only and has taught me safe ways to move. I walk a lot and do tai chi.
Evenity's action peaks, as I remember, around day 11 or so. Most people do seem to do fine on it and have good results. Good luck!