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What comes after Evenity?

Osteoporosis & Bone Health | Last Active: Nov 1 8:05am | Replies (100)

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@kennylk

Hi, all, just found this site. This has been very informative for me, and helpful. Rec'd my last/12th Evenity injections 2 weeks ago. The start of my journey was prompted by a fall Aug 2023 in which I destroyed my ankle [had ORIF surgery] and had 3 vertebral fractures. Had a DEXA scan and voila "you have severe osteoporosis". Just had a 1-yr F/U DEXA and was pleased to have 12% improvement in spinal density and 5% ttl hip, but my osteo is still serious. Then, the decision of what to transition to. The rheumatologist recommended Fosamax, Reclast, or Prolia. We discussed pros and cons, she felt Reclast was best option for me [I can't deal with needles]. Have been searching the internet for info, finally tending toward Reclast. Met with my spine doc last week to ask her input [I trust her] and she also felt Reclast was best option for me. So, am waiting for rheum. folks to get it all sorted out w/ insurance and get my infusion scheduled. Plan for me is 5mg, 1X/yr for 3 yrs [3 doses], then a 2 yr holiday. I am scheduled for more ankle surgery but need to have Reclast 1st, as no needles or even dental cleaning for 3 mos following surgery.
I had no reactions/side effects with Evenity. Someone mentioned pain with injection - ask the nurse to slow down the rate of the injection, I did learn that. I am concerned about the muscle/bone pain with the Reclast. I hope not as I have enough pain with my ankle. I am only 73 with good longevity genes so am wondering how this will all carry on over the next 20+ years. I am fortunate to have no other health issues. Has anyone been on Reclast for more than 10 yrs [incl. holidays]? Good luck to everyone, positive outcomes.

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Replies to "Hi, all, just found this site. This has been very informative for me, and helpful. Rec'd..."

@kennylk as far as I know and from what I have been told, it is suggested that we do Reclast for a total of 3-5 years. After that the risk of jaw necrosis or atypical femur fracture apparently goes up. I am in the same boat, wondering if doctors/research have a long term plan as yet. In one article I saw speculation about doing short bursts of Evenity between other meds (bisphosphonates) but with that time limit I am not sure how that would work.

I have also been told three years Reclast (I did two years Tymlos and 4 months Evenity and have several fractures) then maybe a drug holiday but certainly plan on asking, "Then what?" My hope,which may be unfounded, is to then spend some years doing "holistic approaches." (See "Great Bones" by Keith McCormick.

@kennylk Not sure what your upcoming surgery is but if it involves bones needing to heal I wouldn't think you would not want to have a Reclast infusion preceding that. It would suppress bone healing I would think. I have not investigated this topic, so I'm no expert here. But if the surgery will require bone healing afterwards I would suggest checking further about taking a strong suppressive of bone activity.
Maybe others have dealt with this and can comment.