6 months of unexplained twitches throughout body, high WBC

Everyone’s blood sugar goes up some after they eat, but not that much. I routinely check out glucose numbers when I review lab results for family members and theirs have never been high. I would definitely explore it. A blood meter is one way to know how it’s going. Good your A1c is normal.

My ENT diagnosed me with post covid syndrome mainly due to my smell/taste disorder. I failed a standardized smell test miserably. I also had little taste for almost a year. They have returned though. I do still have a constant bitter taste.

My neurologist says I may have that, but he believes my numbness in feet and tingling in arms and hands is due to B12 deficiency. Of course, it could be diabetes or spinal….it has yet to be determined. I haven’t ruled anything out. I take my B12 and I did scent retraining for a while. Overall, I’m better. I’m prepared for some things to be permanent unfortunately.

Berber19, it seems covid often causes weird neurological issues afterward, and autonomic dysfunction could cause some of your symptoms. If no occult infection is found to explain the high WBC and neutrophils, I would suggest you take a look at the possibility of Cushings disease, excess cortisol production from the adrenal glands. It is rather rare but could explain the high white counts, high glucose and even low potassium, and hair loss. It’s like being on Prednisone, but from an internal source-overactive adrenal glands. This can be tested by an 8:00 am serum cortisol level, a simple blood test. Also, it’s normal for glucose to be high for 2 hrs after eating, so glucose measurements should be done fasting or after 2 hrs from eating. I hope your dr will check a cortisol level.

Do you have any low grade fevers? It’s important to actually check For fever with a thermometer as you can have a low-grade fever and not realize it. Fever is an important sign that helps distinguish inflammation and infection from other conditions.

I had not thought about that but think it’s a good idea. MD is really set on not being concerned about it, just that I don’t have diabetes, which ya, but maybe some other reason for all that?

Thank you for suggestion

I just checked and temp was 99, but it hasn’t been that. At Md office is normal. My dtr was sick last week, may be fighting off a similar thing now?

Thank you!! I will check this out. PCP did do a 24 hr urine test which I think was a check on cortisol and was normal.

Thank you for your follow up. Covid seems to be doing interesting things all around. Have heard of similar unexplained palpitations going on in many young people too.

Have you met with a migraine specialist, movement specialist or neurorehabilitation doctor?

No, only a neurologist and ENT so far in specialists. Takes forever to get any referral and then actually see them unfortunately.

I have no idea what your cause is, but I’ll just share what happened with me.

Last year, I saw my first neurologist. Could you discuss a trial medication with your PC of a med to calm down the nerves? After my first neurologist, the tests were normal, but I had experienced extreme body wide fasciculations that could not be explained. He prescribed me one bottle of Clonazepam (small dose) to take as needed. No refills, as this med isn’t usually recommended long term. I try to avoid any medication that isn’t mandatory, so I was very judicious in my use of the med. I found it helped me relax and stopped the twitching. So, while I can’t be certain of the cause of my twitching, it responds to me relaxing. After that, the fasciculations left and now only return occasionally. They are random and intermittent. I now am able to tolerate them better and they leave on their own without medication. Oh, I also attend talk therapy and that helps.