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Considering treatment for M. Abscessus

MAC & Bronchiectasis | Last Active: Nov 8 11:21am | Replies (40)
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@marciag1630

I live bi-coastally. I am being treated by an infectious disease dr at Cedars-Sinai in Los Angeles and a pulmonary dr at Georgetown in DC. We may yet have to go the IV route but not yet, especially as I don’t consistently test positive for abscessus as I do for MAC (a moderate case). I also do airway clearance, of course. Where are you being treated with 5-6 drugs?

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Replies to "I live bi-coastally. I am being treated by an infectious disease dr at Cedars-Sinai in Los..."
sherrig | @sherrig | Oct 16 3:42pm

I am only treating the MAC on 3 antibiotics 3x week. I on and off test positive for Abscessus so am not actively treating. I am not sure the 3x week is going to clear the MAC and if I do Arikayce I must take antibiotics for the Abscesses which are different than the ones used to treat MAC. I go to Johns Hopkins and they seem to treat both at the same time with 5-6 different medications, starting with IV for several months. Not fun and I don't really want to do that. That's why I asked where you were going because it seems they can treat both with 3 medications.

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