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Hemiplegic migraine

Brain & Nervous System | Last Active: Oct 18 2:30pm | Replies (31)

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@aggie82

I have had typical migraines for 20 years did all the usual stuff - Imitrex, Verapamil, Botox, Aimovig. In 2021, I started having "ax in the left eye" pain that left my normal neurologists perplexed. Saw literally 25-30 different types of neuro - for Parkinson's, MS, Movement, went to John Hopkins, Mt. Sinai, no one could figure out why I couldn't walk or talk. It came and went sporadically. I have no aura. Been to the ER a dozen times when my symptoms manifested, they ran all the tests, they all came back normal and then I sat in the waiting room for hours. Finally two weeks ago a brain oncologist (I also have had a number of cancers and fusion back surgeries) saw me caused I fussed so much about not seeing a doctor on my last ER trip and a doctor actually looked at my complete complex medical history and said you need to get to Mayo clinic. She changed all my meds and wants me to have some procedure that only Mayo does. I burst into tears. I am so used to people looking at me like I am nuts.

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Replies to "I have had typical migraines for 20 years did all the usual stuff - Imitrex, Verapamil,..."

Hello @aggie82 and welcome to Mayo Connect. You have had quite the journey with migraines, and I can understand your relief at finding a doctor who listened to you and made a recommendation. Intermittent problems that come and go are often very difficult to diagnose.

You mentioned that you were going to Mayo for a specific procedure that only Mayo does. Do you know the name of the test? You also mentioned that the doctor you saw changed your medications. Have these changes helped?