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Is my spine issues causing my symptoms?

Spine Health | Last Active: Oct 17 3:16pm | Replies (13)

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@kellicoopernhb

Thank you so much. I have seen 2 orthopedic surgeons, and 1 neuro surgeon. The 1st orthopedic surgeon that did my lumbar surgery a year ago told me I need fusion surgery and told me he wouldn't do it on me for 12 more years because I was to young and pretty much pushed me out the door. Then I finally got into a neuro surgeon and she says there is nothing in my spine that is causing my issues. 🙁 She told me to see a neuro so I went to see a neuro and that's when he told me there was nothing wrong with me and just lose 5 lbs and take anti depressants. Well I have lost 5 lbs and I am no better. I have good days and bad days. I then went to another orthopedic surgeon for another opinion and he told me I am fine and just change my mind set and I will be fine. So literally everyone says I'm fine but I can barely walk, I can't do my hair, I have internal tremors constantly. The neuro told me my tremors are anxiety, and I can guarantee 100% they are not anxiety. I do take gabapetin and tramadol and that helps take the edge off. I also get epidurals that haven't helped at all. SI injections do help me. It is not normal to barely be able to walk and all of the symptoms I have. I am trying to be my own advocate but really so discouraged. 🙁 Maybe this is it and I won't get better and I just need to treat my symptoms, but I was 100% normal before so I just can't accept that there is nothing wrong with me. 🙁 So just looking for feedback from others, I know there is something wrong, I just need to find the right path to help me. 🙂 Thank you for your feedback.

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Replies to "Thank you so much. I have seen 2 orthopedic surgeons, and 1 neuro surgeon. The 1st..."

@kellicoopernhb I can understand a surgeon's reluctance to fuse a younger person. It may take a lot of looking until you find a surgeon who can help. I had 6 opinions, and surgeons kept refusing me because they didn't understand my symptoms and that was my only spine surgery. It was described in medical literature as a "rare presentation" of symptoms.

What was the lumbar surgery that you had a year ago? This may explain the reluctance because a surgeon doesn't want a bad result and if it's just been a year, that may be what they think. Another possibility is that scar tissue from the first surgery is causing tightness and pain.

A good remedy for that is Myofascial Release Therapy with a good PT. That may lead you to other spine surgeons since PT's rehab patients after surgery and may know some good surgeons.

Here is our discussion on MFR. I have done this to release my surgical scar tissue.
Have you heard of this before? Have you had physical therapy?

Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/