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@jennirdh

Hi ladies! I have just spent the last hour and a half reading everyone’s posts and am so glad to find this site. I just received my first Tymlos pen and plan to start it today and I am very nervous as well. I’m convinced that to start with a low dose and see how I tolerate it is the way to go for me as well.
In reading everyone’s histories I’m curious that no one has mentioned Prolia injections in their past? It worked great for me, then ironically, I decided to go back to oral ibandromate and less than a year have had three compression fractures. I wish I had never stopped it. I had no side effects with that, and no am facing 2 years of Tymlos…then probably back to Prolia.
Hopeandhope, has your doctor talked about that since you’ve had no fracture as yet?

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Replies to "Hi ladies! I have just spent the last hour and a half reading everyone’s posts and..."

I agree, jennirdh, that this site is great! I also just found it - two days before starting Tymlos :). I'm sorry you had some compression fractures - to get on my soapbox, osteoporosis is generally considered an older woman's disease and thus has not been studied as much as it should have been. I mean, the first osteoporosis drug was developed in 1995! So it frustrates me that the information to treat and manage osteoporosis is spotty and often unclear. My endocrinologist says everyone is different, but that does not negate the fact that treating this disease is not straight-forward. I do think the medical profession is getting better at addressing osteoporosis but it is not nearly where it should be. Even trying to find out what type of medical professional to see can be confusing. So, we end up doing a lot of research ourselves to figure things out and to rely on others' experiences and knowledge through a forum like this. I had to ask to get the bone marker tests after reading a lot about osteoporosis, but my endocrinologist did give me a lab order to do so. All this to say, I sympathize with you - how frustrating to have those fractures after doing so much to treat your osteoporosis.
My doctor was alarmed that my Dexa spine score decreased by such a large percentage so she thought the bone-building drug would be best first in order to try to prevent fractures as she feels I am high risk for fractures. I know I have to go on something else to lock in the gains from Tymlos, but we haven't gotten to that point yet so I don't now what she will suggest or give options for. I really don't want to be on drugs forever and. hope after this I can at least take a break, but we will see.
Good luck starting Tymlos! I hope you experience minimal or no side effects!! Cross fingers 🙂