@kellicoopernhb
I am a 55 year old female and have spine issues and had similar symptoms as you. It is not in your head and your symptoms plus MRI of cervical and lumbar spine shows that you have compression of your spinal cord and nerve roots causing your symptoms. I was finally diagnosed with cervical spondylotic myelopathy (spinal cord flattening/compression injury), degenerative disc disease, and stenosis which caused daily headaches, tinnitus, neck/shoulder pain, weakness and numbness in arms/hands (affecting handwriting and I would constantly drop things). I also had bladder control issues and heaviness in legs when walking. Symptoms improved after ACDF surgery to decompress and fuse my C5-C6. This is an urgent issue because injury at that level can become permanent if not decompressed asap. I have some permanent injury to arms/hands (weakness in shoulders and hands/wrists plus numbness).
My lumbar spine had congenital stenosis, degenerative disc disease and neurogenic claudication. It caused pain, weakness and numbness from lower back/hips/buttocks down to feet. I had surgery in August 2024 to decompress/fuse L3-L5 and many symptoms have improved. Before surgery, I could barely sit, stand or walk for long without symptoms starting. My quality of life before surgery was worsening, not to mention mental health/depression went along with it.
It is really important you take your MRIs asap to a highly rated orthopedic spine specialist/surgeon and/or neurosurgeon to get multiple medical opinions and options to address your condition and symptoms. You seem to have spine structure issues affecting your spinal cord and nerve roots 2which may be causing your symptoms. Neurologists are not the right doctors to see for your condition and your neurologist should have referred you. I had similar issues with my neurologist who ignored the cervical spinal cord flattening noted in my MRI report which is serious. It seems you may have a spinal fluid leak or flow issue because your MRI notes a couple places where there is fluid build up.
I am praying you get to the right specialists and that you strongly advocate for yourself and your healthcare.
Thank you so much. I feel like I am going crazy and I am a year into this now and still no real answers. I feel like our medical system is so broken, and I am ready to go out of the country to get help because I feel like our system just has so many road blocks. 🙁