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@jc76

@mspotter1956
We all started where you are at now. A lot to think about and decide. Please understand that we are all different and everyone of our cancers is unique to us. So what is good, and what has worked for others, might not be the right choice for you.

When you meet with your urologist or R/O I suggest if they don't offer asked for the Decipher tests and PSMA test. Let them explain what they do and offer to the diagnosis. Those two tests will help defined the and confirm the aggresiveness (Decipher) of your cancer and if it has spread (PSMA) outside the prostrate.

To give you an example of Decipher test results. I was originally diagnozed with intermediate risk. I had the Decipher test and it came back low risk. This changed my consultation treatment that I have radiation and hormone treatments to just radiation. This recommendation was confirmed by Mayo Jacksonville R/O and UFHPTI R/O (again second opinions are important).

Do a lot of research. A poster mentioned a book. It is an excellent book. I am not sure you hvae time or want to do, but UFHPTI offers a free packet that includes the two books mentioned most on MCC along with tons of reserach, treatments offered, explaining photon radiation versus proton. It is a great source of informatino and you will get NO pressure to have it done there. It is free and you can get it just contacting them and they will send it to you via FED/EX.

Good luck. Just know there are a lot of treatment options out there. I see more and more new ones coming everytime I read MCC and do research. Just make the decision on what is best for you. I would also suggest getting a second opinion on diagnosis and treatments.

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Replies to "@mspotter1956 We all started where you are at now. A lot to think about and decide...."

Thank you for the suggestions and information. What are: MCC and UFHPTI?