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@helen1000

Hi Blm1007,
Mayo Clinic is very thorough and precise. They try to understand from various aspects of my life and make a comprehensive analysis in order to know why I got MAC.
I did auto immune tests in NYU and got ANA positive 1;160 My pulmonologist diagnosed me as No Auto immune disease. But Mayo asked me to do ENA to further confirm it. I feel they want to dig out every little detail, which brings me a sense of security.
MAC also attacks people with normal immune, but I have been underweight in all my life, so I believe this is a very important reason for me be prone to bacteria infection. They also told me slender people tend to get MAC reinfection. So I think maintain a healthy weight is so so important.
Hope this helps,
Helen

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Replies to "Hi Blm1007, Mayo Clinic is very thorough and precise. They try to understand from various aspects..."

The underlying question is really why we all got bronchiectasis, as MAC and other pathogens (pseudomonas, fungi) are secondary to bronchiectasis. Environmental exposure to MAC is often the cause of MAC/NTM. Bronchiectasis settled in first. 50% of bronchiectasis cases are idiopathic. I've had an ENT surmise my bronchiectasis is some variant of CF, which has not been decoded yet. I have tested negatively for known CF variants but new ones are being identified. Who knows.