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Considering treatment for M. Abscessus
MAC & Bronchiectasis | Last Active: Nov 8 11:21am | Replies (40)Comment receiving replies
I tested positive for m. Abscessus on and off over a 6 month period. Currently being treated for both m. Abscessus and MAC with Azithromycin, Tedizolid, and Arikayce. Was originally on Linezolid. Side effects too toxic to manage. Too early to tell if Tedizolid will be an improvement. Have you had a CT scan? Did it show any cavity formation from the abscessus? There are great videos on YouTube by Charles Daly at National Jewish in Denver about when and how to treat NTM diseases.
Best wishes.
Replies to "I tested positive for m. Abscessus on and off over a 6 month period. Currently being..."
Curious, where do you treat for the MAC and Abscessus? My current provider usually treats with 5-6 medications, one being IV. I don't want to be tied to IV treatments. Are any of these IV?
The video is terrific. I learned so much! Can't thank you enough!
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Hi Marcia! Thank you so much for your reply. I will definitely watch the video. If you don't mind my asking, I'm curious about what toxic side effects you experienced with Linezolid. It's one of the medications being considered for me. I already have mild to moderate tinnitus and I'm afraid if it gets worse it would drive me nuts! (unless it was just temporary) I mostly get neurological side effects from antibiotics like tremors, headache, balance issues. I've had 2 CT scans but I don't really know what they showed in any detail. I plan to find out more. I've been being "monitored" for the past 18 months and have an appointment in January to discuss possible treatment. So I'm trying to do my homework. How long have you been on your meds and how are you feeling? Are you with the Mayo Clinic? I'm with the brochiectasis clinic at UNC in Chapel Hill NC. Not sure if I would want a second opinion at Mayo.