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Why is breath holding important during airway clearance?
MAC & Bronchiectasis | Last Active: Oct 25 3:50pm | Replies (47)Comment receiving replies
Helen- It appears that you have gone to Mayo for a work up with Bronchiectasis and are also going to NJH. It will be interesting to hear about the differences of approach and instructions you will receive and have received from both.
Also, why did you try peptiede and decide to use peptide? Was it a supplement from a vitamin shop/department?
Barbara
Replies to "Helen- It appears that you have gone to Mayo for a work up with Bronchiectasis and..."
Hi Barbara,
I used a peptide thymosin alpha 1 because it helps a lot with my energy level and also helps with my chest congestion since I used it. But Mayo told me it may not be good to me. I also feel weird because I dont feel fatigue from MAC medication. Now I am completely off it.
It is a regenerative medicine and many online vendors are selling it. It is also used for long covid, or patients with chemo, as it is an immune modulator.
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Hi Blm1007,
Mayo Clinic is very thorough and precise. They try to understand from various aspects of my life and make a comprehensive analysis in order to know why I got MAC.
I did auto immune tests in NYU and got ANA positive 1;160 My pulmonologist diagnosed me as No Auto immune disease. But Mayo asked me to do ENA to further confirm it. I feel they want to dig out every little detail, which brings me a sense of security.
MAC also attacks people with normal immune, but I have been underweight in all my life, so I believe this is a very important reason for me be prone to bacteria infection. They also told me slender people tend to get MAC reinfection. So I think maintain a healthy weight is so so important.
Hope this helps,
Helen