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My Husband's journey with Glioblastoma

Brain Tumor | Last Active: Oct 21 5:20pm | Replies (174)
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@nancyhafer

Bill has recurrence after 13 months of none. Tolerated chemo well. Peripheral vision was his loss after surgery. Looking at radiation and avastin now. This recurring tumor is much smaller than the original tumor and is on the right side now. He is complaining of more confusion and vision issues. Feels the room is darker. Very depressed about dying now. Any experiences appreciated 😊

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Replies to "Bill has recurrence after 13 months of none. Tolerated chemo well. Peripheral vision was his loss..."
Colleen Young, Connect Director | @colleenyoung | Oct 21 5:20pm

Oh, @nancyhafer, this must be so hard for you to see Bill suffer, especially dealing with the harsh reality of facing the end. Have you sought the help of someone for both of you. For example you may wish to
a) seek the counsel of an oncology social worker
- How an Oncology Social Worker Can Help https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/how-an-oncology-social-worker-can-help/

b) ask your cancer center about an inperson or support group meeting for patients and/or caregivers
- Brain Tumor Support Group Meeting: Compass Connect
https://connect.mayoclinic.org/event/brain-tumor-support-group-compass-connect-10/
- Cancer and Transplant Caregiver Support Group Meeting
https://connect.mayoclinic.org/event/cancer-and-transplant-caregiver-support-group-28-8162/
c) look into supports from your local hospice

Might any of these help?

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