← Return to Anyone taken Evenity (romosozumab) for Osteoporosis?

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@sunny65

@windyshores , thank you so much for your answers. They somehow comforting.
I been using Clonazepam for over year now. It helps me sleep through the pain. I never tried Flexeril. The biggest problem I have that every doctor gives me a different answer. Very first diagnosis was - pain from annular tears. After that I seen neurosurgeon he said probably something pressing on nerve. I feel that my knees becoming very numb and my legs are so heavy. Never experienced this before. It is very confusing because we are going to doctors believing that they know something more and they can help. It is very hard with osteoporosis because not a lot of doctors can give you a treatment plan. I am going to the same pain clinic doctor for number of years. He is a good doctor but I had a couple of different injections without any improvement and now he is just prescribing more pain killers. I been taking smallest amounts possible and most of the days just suffering from pain I never imagined. I didn’t loose so much height.At least not yet. I been always pretty active and fit. Even I fractured my vertebrae I recovered very fast. No doctor told me to be careful after this. Until this March. It is scary to spent almost all day in bed. I feel like no way out. I agree that Evenity is not the main source of the pain but probably contributes to it. Do you think that would be wise for me to switch to Tymlos after a couple of months? I’ve read on this site that some ladies have back pain while on Tymlos. I know that you have different experiences. I am dedicated this week to find a new doctor and somehow get in touch to my new endocrinologist. I am seeing my doctor next week and ask to have a new MRI just to see if there any changes in my spine.DEXA test is already set.

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Replies to "@windyshores , thank you so much for your answers. They somehow comforting. I been using Clonazepam..."

@sunny65 I read an article about young people "bedrotting"_ meaning staying in bed. I also spend time in bed and joke that I am young again! I read, watch Netflix, and think of it as a refuge. But if severe pain keeps you in bed, it might feel more like a prison!

I am really glad you are getting an MRI. One healed fracture should not explain your pain. As for Evenity, I guess you can only tell when you stop. My doctors had "no data" on Evenity after Tymlos and even less about Tymlos after Evenity but maybe your doctor will agree.

I hope and even expect the MRI will be very helpful. Keep us posted. So sorry for your pain!