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Cervical C5-6 Nerve

Spine Health | Last Active: Oct 19 10:14pm | Replies (25)

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@dstone501957

My PCP several months ago worked with some medical info I provided for trigeminal neuralgia, had me try Carbamazepine, after a few weeks I could not tolerate it, and I was not seeing any benefit. Main issue with it was tardive dyskinesia (involuntary body movements). Neurologist thought it was the greater auricular nerve and prescribed Oxcarbazepine, which I could not tolerate either with similar tardive dyskinesia side effect. Another Neurologist that my PCP referred me to, totally dismissed my opinion that it was a compressed nerve in my cervical and said it was neuropathy. He over medicated me on gabapentin took me from 300mg 3 times a day to 600mg 3 times a day plus put me on 25 mg of nortriptyline, a second follow up visit he still refused to consider a compressed nerve and increased me to 800 mg 3 times a day on the gabapentin and 50 mg of nortriptyline. I could not tolerate the 800mg level of gabapentin. I have since discontinued the nortriptyline and decreased the gabapentin back down to 300 mg 3x a day. There was no noticeable improvement with the increase in dose and the nortriptyline he added. My recent October 10 Cervical MRI has proven my opinion to be correct. I hope to hear from my DRs that will be reviewing the Radiologist MRI report early this week.

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Replies to "My PCP several months ago worked with some medical info I provided for trigeminal neuralgia, had..."

@dstone501957 Yikes! I think you are correct about cervical spine issues of nerve compression. Doctors see what they want to see, and the neurologists have been pushing drugs to treat symptoms instead of looking for the cause of the problem. You really need above all else, the opinion from a good spine surgeon. You have the right to fire doctors who are not helping you and seek better specialists. This is exactly why patients need to advocate for themselves. If you have physical problems, perhaps physical therapy helps that or surgery that corrects a physical problem of structural damage and compression. No drug is going to fix spinal cord or nerve compression. They are just treating symptoms and not solving problems. They have been wasting your time as your spine condition worsens and you have symptoms common to cases of spinal cord compression. It's just maddening. I went through 2 years of jumping through hoops and being denied help. They wanted to give me Gabapentin too. I chose surgery instead when I found a competent surgeon at Mayo. I did it early enough that all my pre-surgery pain was resolved, and I don't have spine related pain or disability from a spine condition now. Keep after your surgeon about the radiology report and you may want to research some other surgeons for second opinions. There will be a waiting line for an appointment.