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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: Nov 5 10:09pm | Replies (1348)Comment receiving replies
@sunny65 I am so sorry about your pain. I also have fractures and long term pain so I get it, but yours is much worse!
Tymlos actually helped my pain. It is reputed to help with healing of fractures but if yours are not recent, they have probably already stabilized.
Have you had an MRI of your spine? Dr. McCormick told me that 40% of his patients have joint pain on Evenity. But your back pain sounds different and I do wonder if it is related to your fractures. In my case most of the pain is muscle spasms because my fractures have shortened my spine so much that I think my muscles are confused! (I have a soft brace with velcro that I wear if I have to lift anything but otherwise I don't wear one.)
But you could have something pressing on a nerve as a result of changes in your spinal structure, or a form of stenosis, or a slipped disc- all kinds of possibilities that seem more likely than an Evenity side effect in my view (but ask your doctor). I really hope you can have some imaging! And that you can get some relief!! Have you tried a muscle relaxant like Flexeril or Klonopin?
Replies to "@sunny65 I am so sorry about your pain. I also have fractures and long term pain..."
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@windyshores , thank you so much for your answers. They somehow comforting.
I been using Clonazepam for over year now. It helps me sleep through the pain. I never tried Flexeril. The biggest problem I have that every doctor gives me a different answer. Very first diagnosis was - pain from annular tears. After that I seen neurosurgeon he said probably something pressing on nerve. I feel that my knees becoming very numb and my legs are so heavy. Never experienced this before. It is very confusing because we are going to doctors believing that they know something more and they can help. It is very hard with osteoporosis because not a lot of doctors can give you a treatment plan. I am going to the same pain clinic doctor for number of years. He is a good doctor but I had a couple of different injections without any improvement and now he is just prescribing more pain killers. I been taking smallest amounts possible and most of the days just suffering from pain I never imagined. I didn’t loose so much height.At least not yet. I been always pretty active and fit. Even I fractured my vertebrae I recovered very fast. No doctor told me to be careful after this. Until this March. It is scary to spent almost all day in bed. I feel like no way out. I agree that Evenity is not the main source of the pain but probably contributes to it. Do you think that would be wise for me to switch to Tymlos after a couple of months? I’ve read on this site that some ladies have back pain while on Tymlos. I know that you have different experiences. I am dedicated this week to find a new doctor and somehow get in touch to my new endocrinologist. I am seeing my doctor next week and ask to have a new MRI just to see if there any changes in my spine.DEXA test is already set.