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DiscussionAnyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: 4 days ago | Replies (1363)Comment receiving replies
Replies to "Thank you so much @windyshores for always replying to me. The bad thing is that I..."
Sunny65, Im so sorry what you're going through. And what's worse, you're not sure if it's Evenity or a disc issue. I feel for you. In January, I fractured my L3. The pain was off the charts, excruciating, so I know what you're going through. A pain doc prescribed opioids which took the pain level from a 10++ (more like 1000++) to an 8, so I felt there was no benefit there. I was popping pills like crazy (and I'm the type of person who hesitates to take anything) but I was desperate for relief. Opioids, steroids, strong muscle relaxants - absolutely nothing worked. I became bedridden because I no longer could even stand, walk or even sit. I went done to 97 lbs and lost a tremendous amount of muscle in my lower half and only relief I got was lying down.
After 10 days, I got an appt. with a spine surgeon from NYU. I could no longer stand or walk. I was carried in and placed on the exam table. I was a disheveled mess since I couldn't take care of myself. The spine doc realized I was at the end my rope and suggested 2 emergency epidural injections. He did them not exactly knowing what the exact problem was but he saw I was in distress. I had an MRI scheduled after this visit in 5 days so the only images the spine doc had was from a CT scan I had a few days earlier from an ER visit. He gave me 2 emergency epidural injections at my L3 and L4 - but for him, it was a hunch because without me having the MRI done prior to that first visit, he could only surmise what was going on with my back. After the injections, the pain slowly subsided and it took a few weeks for a good amount of pain to go away. I became mobile again. The MRI did show the fracture. Perhaps you might benefit from an epidural injection(s)?
Here's the interesting part. Afterwards, with my MRI results, I went to an excellent physiatrist who is a clinical professor at Columbia. He took one look at my MRI results and told me that the excruciating pain I had was not from the fractured vertebra but instead from severely herniated discs. I still had some residual back pain. He had me lean backwards ever so slightly (I was so scared to do this, you have no idea) but he insisted saying this will help the herniated disc problem. When I returned upright, my pain was greatly diminished. I was so shocked I felt like crying. Then he told me to read up on Robin McKensie and his method of treating back pain (pretty much all PT's know the McKensie method or at least have heard of it but don't try doing anything like this unless your doctor or PT tells you specifically to do this).
The point of all this, don't give up trying to find the source of that excruciating pain you're experiencing. I had went to quite a few doctors while in that same condition and only the spine doc (and the injections) and the physiatrist nailed it the problem.
@sunny65 I am so sorry about your pain. I also have fractures and long term pain so I get it, but yours is much worse!
Tymlos actually helped my pain. It is reputed to help with healing of fractures but if yours are not recent, they have probably already stabilized.
Have you had an MRI of your spine? Dr. McCormick told me that 40% of his patients have joint pain on Evenity. But your back pain sounds different and I do wonder if it is related to your fractures. In my case most of the pain is muscle spasms because my fractures have shortened my spine so much that I think my muscles are confused! (I have a soft brace with velcro that I wear if I have to lift anything but otherwise I don't wear one.)
But you could have something pressing on a nerve as a result of changes in your spinal structure, or a form of stenosis, or a slipped disc- all kinds of possibilities that seem more likely than an Evenity side effect in my view (but ask your doctor). I really hope you can have some imaging! And that you can get some relief!! Have you tried a muscle relaxant like Flexeril or Klonopin?