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@katgob

Denise, what cancer do you have? I like to think that my mind can begin to think of the people i know that have had chemo and continued to live for years even with stage 4. Herceptin for one of them she says is keeping her alive. Let u know here to understand or support you.
The whole infusion process is done for your ultimate care. I focused on the nurses caring for all of us, brought something to read, ask many questions of the RN assigned to me. They take care of patients all day, every day. They comforted me with ways to handle the effects and how to care for myself through it,
I had melphalan for my bone marrow transplant. Only one dose of that but followed by Cytoxan. With my conditioning for the transplant i had five rounds of a chemo. In a row. I had 13 rounds of chemo in late 2021.
I want to ask what is your fear? If family does not listen, come here. Places like this where we walk through fear of diagnosis and fear of treatment.
Melphalan wipes out the bone marrow. Wipes it clean so the new cells come. That chemo caused nausea that did not stop until i got the Emend pill. It works 72 hours, and it worked.
Nothing shows that i have had chemo. My health shows that so far it has worked.

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Replies to "Denise, what cancer do you have? I like to think that my mind can begin to..."

I have mixed uterine clear cell and serous cancer. Both are aggressive and clear cell doesn't respond well to chemotherapy. I'm not afraid I'm as angry. I'm from a long lived family. The live into their late 80 some to past 100. They live with diabetes and heart issues but they are living and they are active most their life. I want that for me too.
I was 38 when my daughter was born. She is only 26. I wanted to be around to watch her flourish into middle age.

I guess if there is one fear it's dying of cancer. I seen the slow wasting. I seen how families are injured by the process of supporting someone dying. I live in a state that will prosecute people who assist in euthanasia so that will not probably be an option for me when the time comes

I do believe that my body if it's functioning well can fight off cancer, but I also have Crohn's disease. I was undiagnosed for more than a decade and I believe Crohn's and the treatment for Crohn's set me up for cancer. The question is how soon After I finish chemotherapy will the Crohn's start its act up on me?

I have a functional doctor. Only months before my cancer diagnosis we were working on identifying what contributed to me developing Crohn's. As you know the traditional medical establishment doesn't believe in root cause of disease they just use drugs to suppress symptoms so you feel better but your body isn't healed.

My hope is the functional doctor has identified the route cause and I'll be able to manage Crohn's without immunosuppressant drugs that make your body susceptible to infection including cancer.

My cell lines are rare enough that there isn't a maintenance protocol so I'll go into a trial for Herceptin as maintenance. I don't know how long that will be. Until my heart is damaged?

I don't think that being realistic about my situation will jinks me. I believe I can have the understanding that all my efforts to rid my body of cancer won't work and also know that there is a chance for cure if I do all the things. It feels like a Schrödinger’s Cat situation. I'll both alive and dead we won't know until the box is opened.