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Prostate Cancer Support Group Meeting
Online & Rochester, MN

Prostate Cancer Support Group Meeting

Thu, Oct 10, 2024
12:00pm to 1:30pm CT

See all upcoming occurrences

Description

The Prostate Cancer Support Group is an in-person and virtual group for Mayo Clinic patients and their caregivers. The group meets monthly on the 2nd Wednesday of the month from noon to 1:30 pm CT.

Each month guest speakers from the Mayo Clinic oncology team provide education on specific topics related to prostate cancer. Following the presentation and Q & A time, members share information and experiences.

In-person space is limited, but all are welcome to participate via Zoom.

Join Zoom Meeting
https://mc-meet.zoom.us/j/99555673337?pwd=RXoyN3c1MlIxak1zRHRoUWtia0ROdz09

Location

Online & In Person
Medical Sciences Mann Hall
300 3rd Ave SW
Rochester, MN 55902

Contact

Richard Vetter, Ph.D.
Richard Vetter, Ph.D.
Email: rvetter@mayo.edu
Phone: (507) 281-3917
flyd | @flyd | Oct 4 9:27am

I was over radiated, causing radiation proctitus. I've had 3 sig Flex with APC applications. My sig colon is fine now.(my prostate cancer is gone,PSA is.2) after the 3rd I had a sys scope for urethra blockage. WS told my bladder was clear no cancer, but was loaded with scar tissues in urethra. Within 2weeks of scope, I started urinating blood heavily for 2 weeks, it subsided and I started with a minor leaking. I started wearing depend guards, the leaking has increased. I am now told I have 2 bulbous strictures in urethra that require 2 separate operations 6 months apart.
I will appreciate any comments, suggestions or alternatives for my conditions.
Flyd

REPLY
3 replies
budisnothome | @budisnothome | Oct 7 7:27am
In reply to @flyd "I was over radiated, causing radiation proctitus. I've had 3 sig Flex with APC applications. My..." + (show)
@flyd

I was over radiated, causing radiation proctitus. I've had 3 sig Flex with APC applications. My sig colon is fine now.(my prostate cancer is gone,PSA is.2) after the 3rd I had a sys scope for urethra blockage. WS told my bladder was clear no cancer, but was loaded with scar tissues in urethra. Within 2weeks of scope, I started urinating blood heavily for 2 weeks, it subsided and I started with a minor leaking. I started wearing depend guards, the leaking has increased. I am now told I have 2 bulbous strictures in urethra that require 2 separate operations 6 months apart.
I will appreciate any comments, suggestions or alternatives for my conditions.
Flyd

Jump to this post

flyd. You could start a new discussion under the prostate support group heading not this one under events. I have had it all and know what you are going thru. Are you in Minnesota? I eventually got the ams 800. There are surgeons who specialize in radiation caused ptoblems.

REPLY
1 reply
johnny8924 | @johnny8924 | Oct 7 5:03pm
In reply to @flyd "I was over radiated, causing radiation proctitus. I've had 3 sig Flex with APC applications. My..." + (show)
@flyd

I was over radiated, causing radiation proctitus. I've had 3 sig Flex with APC applications. My sig colon is fine now.(my prostate cancer is gone,PSA is.2) after the 3rd I had a sys scope for urethra blockage. WS told my bladder was clear no cancer, but was loaded with scar tissues in urethra. Within 2weeks of scope, I started urinating blood heavily for 2 weeks, it subsided and I started with a minor leaking. I started wearing depend guards, the leaking has increased. I am now told I have 2 bulbous strictures in urethra that require 2 separate operations 6 months apart.
I will appreciate any comments, suggestions or alternatives for my conditions.
Flyd

Jump to this post

How many sessions of radiation did you receive?
Thanks.

REPLY
flyd | @flyd | Oct 10 9:11am
In reply to @budisnothome "flyd. You could start a new discussion under the prostate support group heading not this one..." + (show)
@budisnothome

flyd. You could start a new discussion under the prostate support group heading not this one under events. I have had it all and know what you are going thru. Are you in Minnesota? I eventually got the ams 800. There are surgeons who specialize in radiation caused ptoblems.

Jump to this post

Pardon my error, I thought this is the support group

REPLY
ray311f503 | @ray311f503 | Oct 11 2:35pm
In reply to @flyd "I was over radiated, causing radiation proctitus. I've had 3 sig Flex with APC applications. My..." + (show)
@flyd

I was over radiated, causing radiation proctitus. I've had 3 sig Flex with APC applications. My sig colon is fine now.(my prostate cancer is gone,PSA is.2) after the 3rd I had a sys scope for urethra blockage. WS told my bladder was clear no cancer, but was loaded with scar tissues in urethra. Within 2weeks of scope, I started urinating blood heavily for 2 weeks, it subsided and I started with a minor leaking. I started wearing depend guards, the leaking has increased. I am now told I have 2 bulbous strictures in urethra that require 2 separate operations 6 months apart.
I will appreciate any comments, suggestions or alternatives for my conditions.
Flyd

Jump to this post

Sorry to hear about your experience, kind of scary for someone just starting treatments, I just got my 7th of 28 treatments to come, I just hope for the best. Did you get more than 48 treatments like most patients? Get better soon. Raymond.

REPLY
2 replies
pbrowni25 | @pbrowni25 | Oct 12 6:31pm

I had my prostate removed in 2015. Since then I tracked my Pain in Fingers and feet. Knumbness in my feet and fingers. No one can pinpoint. T

REPLY
pbrowni25 | @pbrowni25 | Oct 12 6:34pm

I had my prostate removed in 2015. Since then I tracked my Pain in Fingers and feet. Knumbness in my feet and fingers. No one can pinpoint. Tried al durgs GAP, LYRICA. Now on Cymbalta 60mg a day. Helps a little.
Anyone know where I can get a diagnosis in Pa. Montgomery county?
Thank you.

REPLY
ray311f503 | @ray311f503 | Oct 21 12:20pm
In reply to @ray311f503 "Sorry to hear about your experience, kind of scary for someone just starting treatments, I just..." + (show)
@ray311f503

Sorry to hear about your experience, kind of scary for someone just starting treatments, I just got my 7th of 28 treatments to come, I just hope for the best. Did you get more than 48 treatments like most patients? Get better soon. Raymond.

Jump to this post

This morning I did the 12th treatment, I need 28. So far so good, no side effects but thank God for diapers, when the urge comes it comes, when driving it is safer to have one on.

REPLY
flyd | @flyd | Oct 24 8:42am
In reply to @ray311f503 "Sorry to hear about your experience, kind of scary for someone just starting treatments, I just..." + (show)
@ray311f503

Sorry to hear about your experience, kind of scary for someone just starting treatments, I just got my 7th of 28 treatments to come, I just hope for the best. Did you get more than 48 treatments like most patients? Get better soon. Raymond.

Jump to this post

I had 22 in November and December 2022. The proctitus appeared 4-5months after,as every thing I read about said it would appear if I would get it. There was never a mention of it as a side affect by 4 cancer doctors and 3 urologist

REPLY
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