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Trying to connect with Lichen sclerous and vulvar cancer women.
Gynecologic Cancers | Last Active: Nov 4 3:56pm | Replies (34)Comment receiving replies
Thank you for sharing I look at people in the grocery stores and I say they look happy why am I facing radical vulvectomy with reconstructive surgery I have not been able to sit properly for 3 years now and after recovering from all this I am told it can still come back in the same place I am so afraid and I cannot think of anything else but this if any one can help me please reply
Replies to "Thank you for sharing I look at people in the grocery stores and I say they..."
It is very hard not to think about. I had vulvar cancer 2 years ago. I had a radical vulvectomy and reconstruction surgery plus chemo and radiation. I am able to sit ok but every time get up or sit down I am reminded. I feel like other cancers you can "forget" about it at times but not vulvar cancer. I am very worried about it coming back too but I know worrying doesn't help either. Everyone asks me why I am not dating (I am 56)..... I don't even know if I can have sex again or what it would even be like to be in that relationship like that.#cancersucks
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I completely understand. We are going away on vacation to take a break while I make a decision on which treatment pathway I will choose. Found out I can’t use any of the recurrence tests because the tumor came while I was in tamoxifen as a recurrence. My hope were shot of thinking maybe some science can help me.
I have to go somewhere beautiful in nature to relax from the fear and noise.