← Return to Just started a week ago the big three and feel so very sick

Discussion
Comment receiving replies
@lvnl

I am also on either Arikayce (amikatcin) or placebo, Azithromycin and Ethambutol (Encore Arikayce study). I am using florastor probiotics - recommended by my gi doc. Only (or one of very few) probiotics established thru clinical studies to help keep intestinal flora in shape with antibiotic treatment.
I also had only mild bronchiectasis and MAC symptoms and while I'm tolerating treatment well physically so far, it is super time- and energy-consuming so in that sense the treatment is more overwhelming than the disease but I definitely want to treat before it progresses and not after! Any of us of a certain age or having other immune etc conditions are at high risk for progression and worse permanent damage.
Anyone just starting on this road and in shock: give yourself time, you will sort out what works best for you to have quality of life vs disease dominating everything!
This group is a tremendous help!

Jump to this post


Replies to "I am also on either Arikayce (amikatcin) or placebo, Azithromycin and Ethambutol (Encore Arikayce study). I..."

Thanks for mentioning "floraster probiotics." Where do you purchase them? I am glad that it has been through clinical studies.

Martha