One thing I have found helpful in these situations--get some actual statistics. Find out what your odds of recurrence/spread are with and without an aromatase inhibitor. For example, let's say it reduces metastasis by 50%. That sounds worth it. But what if your basic odds are only 4% chance of spread? Going down from 4% to 2% might not be worth the side effects. Sorry to add math in to an already difficult situation, but basically just ask your oncologist and factor that in to your decisions.
That said, I've been on letrozole for close to 24 months without any problem Both my oncologist and I think it is the only thing keeping my aggressive cancer at bay for the time being. Anyone have any positive experiences that might help others?