I was 42 when I was diagnosed with moderate to severe emphysema from no known cause. It was in 2000. I’m still about the same but continue to have flareups 1-6x/year.
My docs have decided to start me on Dupixent to see if it helps my asthma, cold, high eosinophils and frequent exacerbations.
Traveling via air has become more challenging as the machines I had used that delivered both pulse and continuous flow became unreliable and traveling with two machines is quite onerous.
I started a nonprofit, the Hawaii COPD Coalition and have a website, and we have monthly support group meetings that are via zoom and in person for anyone interested. Details are on the website.
The COPD Foundation and American Lung Association also have helpful resources.