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question re: vaccine and treatments for debilitating fatigue
Post-COVID Recovery & COVID-19 | Last Active: Oct 14 2:26am | Replies (30)Comment receiving replies
My daily goal since this all started was to make my bed (even if I had to crawl back in) and empty the kitchen sink of dishes before going to bed for the night. Anything else is bonus. I’ve been able to keep that up for the majority of the past 4 years.
My speech therapist worked on energy management, basically pacing. She taught me the “Spoon” exercise. Give yourself an amount of spoons that represents all your energy (mental, emotional, and physical) for the day. She uses 100 spoons. As you go through a standard day, assign an amount of spoons each activity uses. Activities can use spoons or give spoons. Everything is an activity. Brushing teeth, making bed, walking across the house, naps, listening to music, reading a book, making a meal, eating a meal, cleaning the dishes… The goal is to have a good amount of spoons left at the end of a day. The key is to alternate negative spoon activities with positive spoon activities so you can do a positive re-charge activity (listening to soothing music; read an enjoyable book) between energy intensive tasks. It makes total sense. I’m working on it.
Like you said, some days are more conducive to pacing than others. But on the days we can, we probably should.
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My problem would be the brain fog in all that. The spoons would be lost. Yes, I sound like I’m being funny but I’m not. Thinking too hard anymore kills me. I was, hence the word WAS, great with math. I was in sales and handled accounting in my past. Now, I have to “ keep it simple stupid” ( that stupid is me, not you!). My fiancé calls bingo as a side gig. He likes to go take his mom too. I would go on occasion and realized I kind of like it, when I win of course. Now, he takes her by himself. Even prior to body completely pooping out. Brain fog hit me early 2021. I get so mad I throw my dauber down and quit. I can’t keep up. I feel like yelling out, SLOW DOWN. lol. I would get spit at by some serous old bingo ladies though. That’s kind of how the spoon thing comes across as. I get pacing. I make it simple. If I go out tomorrow for more than to Dr and back (like going to bingo as example) then I know, next day I do nothing except sleep, bathroom, and run to kitchen for applesauce or cereal. Fiancé will cook a meal at some point and I veg out to Dr Pimple Popper. lol. I said that cause it’s on right now. I thought, self, who the heck would watch that??? Never knew it would be me. I gross out but still watch. Haha. Running out of crap to watch. I seen every movie on since 2000. Even started watch ones that the lips are going in their language and some bad English actress is reading the lines. Hopeless. Do you do any of this?? Lol