← Return to question re: vaccine and treatments for debilitating fatigue

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@kellysmail2016

Yes to the fatigue getting worse after vaccination. Did you see the two posts I left for fatigue? I talks about Pacing. It helps some but not a cure, at least for me. Some days you have no choice to be able to Pace. Then you crash. I’m in a crash right now again. Hurts horribly and slept 13 hours today and 12 yesterday. I slept 18 the other day. I try to Al least get up and use bathroom a few times to move. It hurts but I know I can get clots. I don’t even roll anymore in a crash state. I just thought of that. I guess that’s really bad for clotting. Dang.

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Replies to "Yes to the fatigue getting worse after vaccination. Did you see the two posts I left..."

My daily goal since this all started was to make my bed (even if I had to crawl back in) and empty the kitchen sink of dishes before going to bed for the night. Anything else is bonus. I’ve been able to keep that up for the majority of the past 4 years.

My speech therapist worked on energy management, basically pacing. She taught me the “Spoon” exercise. Give yourself an amount of spoons that represents all your energy (mental, emotional, and physical) for the day. She uses 100 spoons. As you go through a standard day, assign an amount of spoons each activity uses. Activities can use spoons or give spoons. Everything is an activity. Brushing teeth, making bed, walking across the house, naps, listening to music, reading a book, making a meal, eating a meal, cleaning the dishes… The goal is to have a good amount of spoons left at the end of a day. The key is to alternate negative spoon activities with positive spoon activities so you can do a positive re-charge activity (listening to soothing music; read an enjoyable book) between energy intensive tasks. It makes total sense. I’m working on it.

Like you said, some days are more conducive to pacing than others. But on the days we can, we probably should.